Table 1 Demographics of participants with PWS and their families for the pilot, large-scale and follow-up studies
Pilot | Large-Scale | Follow-up | |
|---|---|---|---|
Demographic Variables | M (SD) or % | M (SD) or % | M (SD) or % |
N | 133 | 624a | 119 |
Age, Years | 18.86 (7.89) Range: 5–43 | 18.60 (10.65) Range: 5–59 | 15.25 (7.75) Range: 5–44 |
Gender | 42.1% Male 57.9% Female | 46% Male 54% Female | 48% Male 52% Female |
Genetic Subtypes | |||
Paternal Deletion | 61.1% | 50.8% | 48.8% |
mUPD | 32.8% | 34.4% | 43.1% |
Imprinting Deficit | 3.8% | 3.2% | 3.1% |
Other | 2.3% | 2.3% | 1.3% |
Unknown | 9.3% | 3.7% | |
Education Maternal/Paternal | |||
High School 2-year college 4-year college Post-graduate | 21.4%, 27.0% 16.8%, 10.3% 31.3%, 32.5% 30.5%, 30.2% | 17.2%, 24.4% 29.8%, 30.6% 34.2%, 26.9% 18.9%, 18.1% | 18.8%, 23.3% 15.0%, 11.3% 28.1%, 31.4% 38.1%, 34.0% |
Annual Income | |||
$10,000 - $30,000 $31,000 - $50,000 $51,000 - $70,000 $71,000–100,000 > $100,000 Unknown | 6.1% 4.5% 13.8% 20.8% 54.6% -- | 5.8% 16.7% 16.0% 17.1% 35.3% 9.1% | 8.8% 8.8% 13.8% 16.4% 52.2% --- |
Race, Ethnicity | |||
White | 92.3% | 85.2% | 88.7% |
Hispanic | 3.1% | 7.4% | 5.2% |
Asian | 2.3% | 2.5% | 3.5% |
Black | 2.3% | 2.3% | 2.6% |
Multi-racial | 2.6% |